Hello all people! I simply cannot consider that we are on the cusp of Labor Working day and summer months coming to a near. The very last five to six months have been a overall blur and this summer time, in certain, has flown by. There’s been hospitals (chemo, stem cell harvest, surgical treatment), clinic appointments, and driving again and forth to New York.
But, one particular foot in entrance of the other and a person day at a time, we are grateful to be heading into a new season with a robust boy and hearts complete of hope.
Dominic experienced a fast paced very first few months of August…
🔍 Initial, he experienced a new set of scans (MRI + MIBG) additionally an additional bone marrow biopsy. The scans even now demonstrate condition during his bones but most of the spots are “dimmer” than ahead of, and the bone marrow involvement lowered by more than 50%.
So, there is still work to do, but there is an enhancement. And! Dominic did both equally of the scans with out anesthesia (he has been sedated formerly simply because you have to lay wholly however and the MIBG is around 2 hours). He’s a rock star.
🏥 Future, he experienced his initial round of immunotherapy. The antibody he’s given targets the protein of neuroblastoma cells and because they commonly sit on nerve cells, there is major nerve discomfort accompanying the procedure. The infusion is small (45 minutes) but powerful.
There is a lot of pre-medicine and discomfort management during and right after, and he would generally slumber the entire relaxation of the day afterward. But, the treatment options are outpatient so no clinic stays, and they never impression counts like chemotherapy, so no neutropenia or blood or platelet transfusions.
🦸♂️ Then, he crossed off an additional large hurdle… radiation. He did this awake with no anesthesia as well… 2 times a day for 5 days, he was strapped down applying a distinctive mask that was molded to his head and higher system to hold his head and neck in the correct similar situation every single time (his clavicle was radiated owing to the cluster of diseased lymph nodes that have been there, as properly as the tumor bed in his abdomen). An incredible lady who functions there has the young children decide what they want their masks to be and then custom paints them… Dominic selected Iron Person. There are some extremely special folks in this earth.
He could also decide on no matter what songs he required to be piped in every time and selected Xmas songs every day 💕🌲 He thoroughly rocked it and the persons functioning there were absolutely phenomenal.
➡️ Next… we get to be residence for a pair of weeks, then it is again to NY for one more spherical of immunotherapy, a new established of scans, and an additional bone marrow biopsy.
📘 In the meantime, he started off kindergarten this week! He’ll be signing up for course almost until eventually his oncologist provides him the go-ahead to go to in human being, which we’re hoping will be late September.
💈 His eyebrows, eyelashes, AND hair have all started out increasing again! He’s had a ton of power, has received again all of the excess weight he missing after operation and that very last spherical of chemo and is or else carrying out really, actually properly.
❤️ Thank you all for your ongoing prayers, it usually means so a great deal to our loved ones.
In other news, I am setting up to get some email messages scheduled out heading into the slide and holiday break season to refresh some web-site content material. So, you can glimpse forward to me popping into your inbox more routinely in the coming months 🎉