Hello mates, I hope you all have been well and that you are kicking off summertime in the best way attainable!
So several of you have attained out to check with how Dominic is accomplishing and while I share a speedy photograph on Instagram tales occasionally, I desired to pop in speedily to give you an update.
Since I final wrote, Dominic has accomplished cycles two and a few of chemotherapy. Both designed him sick just one day of the therapy but with a tweak of the nausea meds, he was experience greater.
His new favored in-medical center activity? New music remedy! He receives such a significant kick out of taking part in the instruments 😁
He is also Really into everyday bingo 😍
On the very last working day of his next cycle, he experienced the opportunity to tour the helicopter pad on the medical center roof, which he Liked. The view was astounding and we figured out tons of exciting facts (mom enjoys a very good field trip, ha)!
Although residence, he continues to perform and fairly significantly enjoys existence as typical, including lots of outside the house time now that it is great out!
Between rounds two and three of chemotherapy, we traveled to New York for Dominic to be witnessed at Memorial Sloan Kettering, exactly where they have a workforce of pediatric oncologists who focus in neuroblastoma.
He is becoming treated underneath their guidance, so considerably acquiring all of his chemotherapy below in Pittsburgh, but we will journey there for his tumor removing operation.
We both equally had our initially Uber journey, had Shake Shack for the 1st time (SO Great), and Dominic experienced his initially continue to be in a lodge. A productive trip, but there is definitely no location like household!
Our New Usual
We are receiving quite applied to the signals of lower hemoglobin (two times in a row of getting more consume breaks than standard while taking part in exterior? We guessed he was going to will need blood when he went to his clinic appointment the subsequent day and, sure sufficient, he did) and reduced platelets (additional bruising). He has experienced various transfusions of both given that commencing this journey, so a great significant thank you to everyone who has at any time donated blood, as we are now so significantly much more acutely informed of the importance of this selfless act.
Hemoglobin, platelets, white mobile counts, neutrophils, and ANC numbers are now just popular dialogue below.
We’ve all type of settled into our new program of treatments, trips to the clinic, running medicines, line flushing, etcetera.
The biggest hurdle considering the fact that this past cycle of chemotherapy is that we have experienced to give Dominic day-to-day pictures (vs the just one-time photographs right after the 1st and next rounds) and it is the absolute worst. He has generally hated shots and he just dreads them, I get nervous, and it’s just a full SCENE. The everyday pictures have been utilized because of his approaching stem cell harvest, to make sure his counts were being sturdy (see underneath).
This coming 7 days, Dominic will have a stem mobile harvest, in which they will insert a non permanent line to extract stem cells (which will then be stored) really should he need to have them in any potential throughout treatment method down the highway. It is our hope that he would not, but they will be there if he does.
The up coming massive step is in two weeks when he will have his tumor removal surgical treatment. Adhering to the surgery, he will have another spherical of chemotherapy and then a number of weeks after that, a battery of assessments and scans to see wherever we stand with the disease.
Please proceed to pray that the most cancers is responding to treatment method, that the surgeons are in a position to take away the tumor safely and securely and successfully, and that he has a relatively easy restoration.
Fun at Home…
A several extra images of the children from new months ❤️
Wishing you all a exciting and safe begin to your summertime! ☀️❤️